This week has had its ups & downs. Julia has been slightly sick keeping us on edge. She hasn't been able to keep down her Pediasure and has been sleeping a lot. Maya has not been sleeping much at all, taking to screaming all night because she wants to get up & play.
My cousin's husband died unexpectedly of a massive stroke this week. The funeral is this morning. It is the kind of thing which makes you realize how precious every moment is, and also wonder what it is you've done with your life. What will I be remembered for?
I have decided to explain mitochondrial disease a little better, in celebration of World Rare Disease Day (which was yesterday). The mitochondria convert food into energy to power your into body, organs, etc. Having dysfunctional mitochondria has been linked to manifest in a myriad of ways: mitochondrial disease (when 2 or more organs are affected), muscular dystrophies, typical & complex migraine headaches, intellectual & developmental impairment, deafness & blindness, Alzheimer's, Huntington's Disease, and so on.
Julia & Maya are constantly fatigued from loss of energy. They overheat very easily. When their bodies are fighting to maintain body temperature, fight off an illness, or to just get through the day, their limited energy is used up and are unable to support their organs & typical body functions, which can cause permanent damage.
There is no treatment or cure for mitochondrial disease. Research has come a long way, though, even in the the 3 years since Julia & Maya were diagnosed. As you can see from the paragraph above, research on the mitochondria has the potential to help many diseases. I truly believe it holds the key to improving many lives.
We are walking to benefit the mitochondrial research April 21st at Olympic Centennial Park. Anyone in the area is invited to walk with us. Please consider a donation & provide hope for my daughters & the countless others who can benefit from research.
Info here
So I bet you want to see the granite now????? They installed the granite on Tuesday. I just LOVE it! I was going to go with white with black swirls before seeing my options. Christina with
Platinum Kitchens suggested this multi-color cream-based granite & I decided to go with her recommendation. I am SO GLAD I did! I absolutely love the granite!!!
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| Counter tops before |
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| New granite counter tops! |
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| Granite counter tops & back splash leading up to the top of the breakfast bar-I think this looks incredible! |
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Granite in dining room pantry
Today they are starting the finish! Painters, plumbers, installers, OH MY! I can't wait to have my dishwasher back!!!! And my new range installed! It is very exciting! Everyone at Platinum Kitchens has done an outstanding job! |
